Conference Publication Details
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Pyrz, K., Semic-Jusufagic, A., Munro, Ch., Couch, Ph., Mills, C., Hourihane, J. & Dunn Galvin, A.
Food Allergy and Anaphylaxis Meeting. European Academy of Allergy and Clinical Immunology
Developing and validating a novel questionnaire to capture bio-psycho-social variables of allergic reactions in the community: the AlleRiC study and the preliminary analyses.
2014
October
In Press
1
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Aims: Allergic disease is a growing health risk in the modern world, while its management at professional and patients’ levels is unsatisfactory. There is no register of prevalence and biopsychosocial co-factors of allergic reactions as they occur in real world settings. The Allergic Reactions in the Community (AlleRiC) study aims to develop and validate an on-line questionnaire to allow real time food allergic reactions to be reported, with scope for an in depth exploration of related real-world factors. Methods: Following focus groups and an expert evaluation, an item pool of 81 items was generated. 39 adults from Ireland and UK, diagnosed with food allergy, evaluated a prototype of the AlleRiC online questionnaire. Individual items of the prototype were psychometrically assessed via a novel Evaluative Scale measuring five different facets of the questions. Results: Individual items were evaluated positively by participants (60-70% of positive scores on the Evaluative Scale). Preliminary psychometric analyses of the questionnaire’s items showed good construct, convergent and face validity (Cronbach’s Alpha >0.7). With reference to co-factors, reactions occurred most often in a social context (67% of cases), especially in small groups (29% of cases) of family members, relatives and close friends (44% of cases). 77% of companions were aware of the participants’ food allergy diagnosis. Reactions had a psychological impact with 87% of cases indicating a change in emotional affect following a reaction (from positive to negative affect). Conclusions: The AlleRiC study demonstrates potential to provide novel findings, which may give new understanding of the real-world, real time factors that give rise to, or prevent, reactions. Such findings will have implications for food allergy management across Europe.
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