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Hanly, Paul and Céilleachair, Alan O and Skally, Mairead and O'Leary, Eamonn and Kapur, Kanika and Fitzpatrick, Patricia and Staines, Anthony and Sharp, Linda
2013
May
How much does it cost to care for survivors of colorectal cancer? Caregiver's time, travel and out-of-pocket costs
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PURPOSE: Cancer treatment is increasingly delivered in an outpatient setting. This may entail a considerable economic burden for family members and friends who support patients/survivors. We estimated financial and time costs associated with informal care for colorectal cancer. METHODS: Two hundred twenty-eight carers of colorectal cancer survivors diagnosed on October 2007-September 2009 were sent a questionnaire. Informal care costs included hospital- and domestic-based foregone caregiver time, travel expenses and out-of-pocket (OOP) costs during two phases: diagnosis and treatment and ongoing care (previous 30 days). Multiple regression was used to determine cost predictors. RESULTS: One hundred fifty-four completed questionnaires were received (response rate¿=¿68 \%). In the diagnosis and treatment phase, weekly informal care costs per person were: hospital-based costs, incurred by 99 \% of carers, mean¿=¿\textlesseuro\textgreater393 (interquartile range (IQR), \textlesseuro\textgreater131-\textlesseuro\textgreater541); domestic-based time costs, incurred by 85 \%, mean¿=¿\textlesseuro\textgreater609 (IQR
10.1007/s00520-013-1834-3
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